Our office is open with limited staff and hearings are proceeding via telephone conferences. We are not taking in person meetings but are available via fax, e-mail, mail, and telephone.

The Law Offices of Sheryl Gandel Mazur
North New Jersey: 973-200-6629
South New Jersey: 609-207-7905

New Jersey girl's rare condition shows need for SSI benefits

For the longest time, doctors here in New Jersey didn't have a diagnosis for a little girl who was unable to walk and talk. By early October of last year, they had ruled out autism and cerebral palsy. In order to determine what she had, they needed to run a lot of tests -- tests that cost a lot of money and left her father wondering what he was going to do.

Although doctors were finally able to diagnose the now 8-and-a-half-year old girl with a condition known as autosomal dominant mental retardation 19, it's incredibly rare, her father explains, telling one reporter that "[doctors have] never found anyone on this earth with this particular disease." Now, the girl's best hope for treatment lies in the hands of a neurologist who believes that inserting electrodes into her frontal lobes may help stimulate communication between her brain and the rest of her body.

The treatment is expensive though, much as is the case for people with serious medical conditions. In this girl's case though, despite the rarity of her condition, she may qualify for SSI benefits that could be used to offset the cost of her treatments.

Even though her condition does not appear on the list of Compassionate Allowances, her condition is medically similar to another condition found in the Social Security Administration's Bluebook: Section 111.07 Cerebral palsy. Though doctors in the girl's case ruled out cerebral palsy, her condition is similar to cerebral palsy in the sense that both conditions inhibit a person's ability to move properly, cause an intellectual impairment, and can significantly affect a person's ability to communicate verbally.

Any parent is likely to worry after learning that their child has rare disabling condition. That's because some parents are already aware of difficult it can be to get benefits when a condition is relatively unheard of or unknown altogether. By finding a medically similar condition though, and getting help from a lawyer when the process becomes too difficult to bear, a person can increase their chances of accessing benefits and helping their child financially for the rest of their life.

Sources: PIX 11, "New Jersey girl diagnosed with unheard of medical condition," Howard Thompson, June 15, 2015

PIX 11, "PIX11 viewers help girl with mystery illness," Howard Thompson, Oct. 2, 2014, "Disease - Mental retardation, autosomal dominant 19," Accessed June 22, 2015, "How does cerebral palsy affect people?" Accessed June 22, 2015

Social Security Administration, "111.07 Cerebral palsy," Accessed June 22, 2015

No Comments

Leave a comment
Comment Information
Email Us For A Response

Contact Our Firm

Bold labels are required.

Contact Information

The use of the Internet or this form for communication with the firm or any individual member of the firm does not establish an attorney-client relationship. Confidential or time-sensitive information should not be sent through this form.


Privacy Policy


West Caldwell Office
195 Fairfield Avenue
Suite 2C
West Caldwell, NJ 07006

Phone: 973-200-6629
Fax: 973-364-1348
Map & Directions

Absecon Office
508 New Jersey Ave
Building B
Suite 1B
Absecon, NJ 08201

Phone: 609-207-7905
Map & Directions